H3ABioNet provides guidelines on data management and governance

    Data Management

    Genomic data are increasing in size and complexity, and data privacy and security are criticial for human data. Therefore it is important to ensure data are managed in an organized, secure and ethical manner. H3ABioNet provides guidance to its members on data management and governance.
    Data Management Plans

     

    A data management plan is a document which outlines how data will be managed in terms of storage, access, use and dissemination. A number of data management plans have been developed, some of which are specific to funding agencies. 

    H3ABioNet supports the development of Data Management Plans in many different areas, one of which is for clinical data collection.  We recommend this resource developed by the Society for Clinical Data Management who have published a document called the Good Clinical Data Management Plan.

    Data Management Plan (DMP) Tools and Resources
    DMP Tools 

    Elements of a Data Management Plan: Link

    Checklist for a Data Management Plan: Link

    The Digital Curation Centre (DCC): Link

    Framework for Creating a Data Management Plan: Link

    DMPonline: Link

    Guide to Social Science Data Preparation and Archiving: Although, for social science, it includes basic concepts of RDM/DMPLink


    DMP Training Resources
     

    Research Data Management & DMP: Link

    10 medical and health research data Things. “10 medical and health research data Things” is an opportunity to explore issues surrounding management of research data, specifically for people working with medical, clinical and health data. Link

    How to write a good DMP. Good data management enables data sharing, thereby creating an opportunity for other researchers to re-use data in new research contexts after the original project has ended.

    Society for Clinical Data Management: Link

    The University of Edinburgh Research Data Management Training (MANTRA): Link

    New England Collaborative Data Management Curriculum: Link

    Data Management Training (DMT) Clearinghouse: Link


    Additional links:

    Best practice for developing a Data Management Plan: H3ABioNet DMP Poster presented at the 13th H3Africa Consortium Meeting, 8-12 April 2019, Tunis, Tunisia.

    10 Simple Rules for Creating a Good DMP: Link

    10 principles for machine actionable DMPs (maDMPs): Link

    The FAIR Guiding Principles for scientific data management and stewardship. Link
    UCT Digital Libraries: Link

    University of Cambridge Data Management Guide: Link

    Contacts: helpdesk for DMP
    Faisal M. Fadlelmola
    Sumir Panji

    Data Governance
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