H3ABioNet provides guidelines on data management and governance
Data & Standards
Data Governance
What is Data Governance?
Data governance is about determining and formalising a framework for how to organise and control data. In genomic research this is highly important and impacts almost all areas of decision making when setting up and running a study.
2. Framework for Data Governance and Ethical Data Use - Nicola Tiffin
3. Data governance guidelines
Some questions that would be addressed when thinking about good data governance would be:
Data governance is about determining and formalising a framework for how to organise and control data. In genomic research this is highly important and impacts almost all areas of decision making when setting up and running a study.
Ethical data use and good data governance is one of H3ABioNet’s core principles, and over the years, the network has gained much experience in this regard. Useful outputs developed include:
1. Data Governance Index Card Presentation - Nicola Tiffin2. Framework for Data Governance and Ethical Data Use - Nicola Tiffin
3. Data governance guidelines
Some questions that would be addressed when thinking about good data governance would be:
- What legislation is in place that impacts my research data?
- Would I be happy with the way my data is managed as a study participant?
- How do I keep the data safe?
- What computing infrastructure do I need?
- How should I build a clinical database?
- How should my data be stored and for how long?
- How should I standardise my data?
- How do I optimise my research output?
- What measures do I need to put in place to ensure high data quality?
- How can I make my data FAIR?
